Links

Here are a few key links that may be helpful.

Royal College of Surgeons
The Get Well Soon leaflet from the RCS has information about all aspects of oesophagectomy including different surgical approaches. A downloadable pdf leaflet is available, which probably does not say anything different from the other links below, however it gives a brief summary of everything, including driving and getting back to work in one leaflet rather than in separate ones or spread over several webpages.

Voluntary organisations

Oesophageal Patients Association
0121 704 9860
Good for information, personal support and buying wedge pillows etc. The OPA have an active patient’s forum as part of healthunlocked.

Macmillan Cancer Support
0808 808 00 00

Wealth of information and leaflets of every size and shape on every type of cancer, personal support and online community.

Heartburn Cancer UK
01256 338 668
Information and support.

Maggies centres
Maggies centres offer support and advice, health and wellbeing work shops, complementary therapies and a pleasant environment to simply go and sit, away from the clinical side of things.

Cancer centres

There are a number of cancer centres in the UK. Here is a quick trawl through some of their sites and what they are offering in terms of oesophageal cancer. This section still needs to be updated.

Clatterbridge
Clatterbridge’s website offer information on upper GI research and treatment.

The Royal Marsden in London
An overview of treatment at the RM.

The Christie
Patient leaflets from this respected cancer centre.

Patient blogs and journeys

Cancer and the Quiff
Ben’s started his journey by posting on Twitter and then started this blog.

My oesophageal cancer journey
A lighthearted, informative, personal patient blog. Peter’s blog helped me a lot when I was first diagnosed.

An Oesophageal Cancer Blog

Chloe has produced a blog after her Dad was diagnosed with oesophageal cancer as a way to help others in the same position.

A turn for the better

This is a collection of stunning art done by cancer patients in Birmingham about their experiences with oesophageal cancer.

Life without a stomach

Although Marne has had a gastrectomy, she has written a long blog about being able to continue her love of running. This was last updated in Oct 2017.